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30 January 2014 @ 02:16 pm
Still here...  
Just a lot of lurking in the past several weeks. My husband's health news has put us both in a funk, and there's a lot of sadness and fear rattling around.

For those late to the news, he went to the ER on New Year's Eve because of shortness of breath. We thought it might have been pneumonia, but instead it was "mild congestive heart failure."

Weeks later, we still don't know why it happened. Maybe we never will. We just know that his EF numbers are really bad, and that he has had to start a low-salt diet (lower than it already was), and limit his fluids. He cannot bike the way he enjoys, and is supposed to find some middle ground of "regular, moderate exercise" that basically leaves him with walking.

He's having to adopt the lifestyle of my Dad, except that my Dad is 88. We don't know what this all means in terms of scary things like life-expectancy, but our thinking is along the lines of taking trips sooner rather than later (especially high-altitude places like Yosemite). This is a condition that does not 'heal' or get better, which makes the situation even worse.

So, yes, I'm still very much around, and enjoying movies/books/fannish things from time-to-time. But not feeling very chatty right now. Don't give up on me.

*hugs* to one and all.

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a rearranger of the proverbial bookshelf: Autumn - season of mistsembroiderama on January 30th, 2014 10:20 pm (UTC)
*hugs* I'm really sorry to hear that you're having to deal with news like that.
The Coalition For Disturbing Metaphorshalfshellvenus on January 30th, 2014 10:28 pm (UTC)
It probably feels like a rerun to my f-list of when my husband went through cancer treatments.

But it's on my mind most of the time, and honestly should be. Just doesn't make me very good company. :(

Thanks so much for the kind thoughts.
Desireex_disturbed_x on January 30th, 2014 10:27 pm (UTC)
*hugs* I'm sorry your going through this. :(
The Coalition For Disturbing Metaphorshalfshellvenus on January 30th, 2014 10:29 pm (UTC)
Thank you. It's so unfair to him, after the cancer 5 years ago, and all of the other medical stuff that has plagued him.

He's such a wonderful man, and it's just so awful that this is happening to him. :(
Entendre? Make mine a double.: baby worried eyesdeirdre_c on January 30th, 2014 10:48 pm (UTC)
Oh Venus, that is all so scary and uncertain and horrible. I will hope for the best for him and that his health returns to 100% as miraculously and quickly as it went south. :(

*hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on January 31st, 2014 01:47 am (UTC)
I should have mentioned that above-- barring something like surgery (if it could help), the damage is irreversible. That's the scariest thing of all, and the impact to enjoying life is just huge for him.

Thanks for the kind thoughts. *hugs*
kick_galvanic, zagzagael, skull_theatrebleodswean on January 30th, 2014 10:53 pm (UTC)
So sorry, hon. We, too, are currently seeing a cardiologist. I'm confused as to why you're not getting the information you need from his cardiologist!
The Coalition For Disturbing Metaphorshalfshellvenus on January 31st, 2014 01:50 am (UTC)
This particular condition's #1 cause is "idiopathic," meaning that doctor's don't know why it happened. His lifestyle factors were all good.

Our best guess, since his echo partway through the chemo treatment looked good, is that the chemo possibly damaged his heart, and that the incredible pain he went through before the hip replacement a year ago restricted his activities to the point where he didn't have a chance to aggravate anything earlier.

But we just don't know, and since the cardiologist has done the one test that might have shown something (and it didn't)... we'll probably never know the true cause.

It's just so sad.
Patty Cryan: monstercopsp_m_cryan on January 30th, 2014 11:31 pm (UTC)
You didn't give up on me; I'm not giving up on you.

Here and listening.
The Coalition For Disturbing Metaphorshalfshellvenus on January 31st, 2014 01:51 am (UTC)
Thank you-- that is such a nice way of phrasing it, too. I've been pleased to see your return to LJ, and to know that you're doing better just as evidence by feeling more social!
angels3angels3 on January 31st, 2014 12:30 am (UTC)
So is he seeing any specialists to try to figure these things out?

I understand completely. Digging in and trying to deal with things like this will make you less than social.

I hope you get some answers that will help. *hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on January 31st, 2014 02:05 am (UTC)
He is seeing a cardiologist, but this is a condition that often just happens out of the blue, without a known cause. That makes it harder to know what to avoid doing that might make it worse!

I'm hoping he gets some guidelines that allow him a little more flexibility, without threatening his health. This is a lot of limitation, especially for an otherwise healthy man.
Vice Captain of the Universe: pretend hugsweeny_todd on January 31st, 2014 12:31 am (UTC)
*sending you lots of pink light*
The Coalition For Disturbing Metaphorshalfshellvenus on January 31st, 2014 02:05 am (UTC)
Thank you. *hugs*
oxymoron67oxymoron67 on January 31st, 2014 12:58 am (UTC)
Good Lord, I am so sorry.

You're in my thoughts and prayers.
The Coalition For Disturbing Metaphorshalfshellvenus on January 31st, 2014 02:11 am (UTC)
Thank you. This whole thing has been such a shock, and seems so unfair after everything else he's been through.
ecosopherecosopher on January 31st, 2014 01:09 am (UTC)
I'm so sorry. I had no idea he was also a cancer survivor. This seems particularly unfair, in light of that :(
The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 07:55 pm (UTC)
It's so hard for him to go through all this again, and the side-effects will limit his activities almost as much as his hip and pain did before he had replacement surgery a year ago.

He deserves so much better. :(
adoptedwriteradoptedwriter on January 31st, 2014 01:24 am (UTC)
Sending best thoughts. So scary! AW
The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 07:55 pm (UTC)
Thank you very much. *hugs*
michelle: and it'll be all right (Liam and Zayn)certainthings on January 31st, 2014 03:23 am (UTC)
:sending out good thoughts:
The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 07:55 pm (UTC)
Thank you. ♥
alien_writings: Reader Girlalien_writings on January 31st, 2014 03:41 am (UTC)
*hugs* I'm so sorry you have to deal with all that. It's not fair. :(
The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 07:56 pm (UTC)
He already has not had an especially easy life, and this really was the last thing he needed. So sad.
Trigger Warning: Lifematchboximpala on January 31st, 2014 03:43 am (UTC)
And hugs back to you, too. This all sounds scary and I imagine it is disappointing that it isn't just something they can fix so he can go back to normal.

The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 07:57 pm (UTC)
I so wish it were something he could rebound from! Finding out that it isn't is such unwelcome news. We never saw it coming, and all of his good health habits before didn't prevent it. Now the goal is just not to make it significantly worse, but it sure takes a lot of joy out of the day to day for him.
Kronettekronette on January 31st, 2014 03:44 am (UTC)
*hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 07:57 pm (UTC)
Thank you!
tidal_racetidal_race on January 31st, 2014 05:19 am (UTC)
I'm not around LJ as much these days, but I still come back to catch up on people on my flist like you, and I'm sorry to hear about your husband. I'm sure no one is giving up on you. *hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on February 3rd, 2014 08:06 pm (UTC)
Thanks for the kind words. I really appreciate them. *hugs*