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10 June 2009 @ 10:18 pm
 
I know some of you have been wondering about the news from HalfshellHusband's tests, and here's the information we've gotten so far:

Something is "growing" inside the bone marrow of the left tibia, below the knee and about halfway down now. There are a lot of possibilities, including various types of cancer and also an infection. We're hoping that it's an infection, obviously, and considering how quickly (4 months) it's gone from an isolated band of pain to swelling clear down the leg, that still seems like a good possibility.

The lung x-rays and CT scan were clear, which points away from something like "primary lung cancer, secondary bone cancer." That's actually good news, because if he had undiagnosed lung cancer then it would be fairly advanced by the time it triggered a secondary site. So whatever he has, it likely hasn't been there for a super-long time.

Yesterday, he went to Oakland to see the orthopedic specialists at the Kaiser facility there. They're also the bone cancer experts, and they couldn't make any guesses about what was going on inside his leg. So next, he'll have a needle biopsy done, and if that isn't conclusive then they'll do a surgical biopsy.

His main symptoms are still just the pain and swelling. It's funny-- the first two most obvious things we thought of clear back in March were 1) MRSA infection and 2) Cellulitus (a tissue infection that his mother and sister have both had). The idea of an infection down inside the bone marrow, contained within the bone, never occurred to us. If it IS that (keep your fingers crossed), that helps explain why we haven't seen fever, nausea, or sepsis by now. The night his sister and I browbeat him into going to the ER, his swelling had suddenly increased and he had fever and nausea, and we thought the doctors would find an infection for certain then.

But one of the first things his doctor did at the beginning was order a blood test to look for signs of bacterial infection, and that came up clear and still would, even now.

We'll be hounding the doctor to get the biopsies done ASAP. I really hope it's an infection, and we're trying to keep positive thoughts in mind.

I'll keep you posted.

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ErinRua: Kittyerinrua on June 11th, 2009 06:58 am (UTC)
Keeping you and HalfshellHubby in my thoughts, luv. I'll pray it is the lesser of evils. I'm only sorry I'm too far away to be of any material help.

*HUGS*
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:23 pm (UTC)
Thanks, Erin. I hope we've been waiting on an infection all this time too.
brigid_tanner: brothers-on fence at lakebrigid_tanner on June 11th, 2009 07:07 am (UTC)
Fingers crossed and hoping for the best!
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:23 pm (UTC)
Thank you!
happy is as happy does: Hug - Friendshappywriter06 on June 11th, 2009 08:15 am (UTC)
Well I'm sorry to hear that he's going through this. I hope everything works out.
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:24 pm (UTC)
Me too. Thanks, Simone. :)
JJ: cornflowerjolietjones on June 11th, 2009 09:18 am (UTC)
Thank you for posting an update, I was thinking about you and wondering how you were getting on. Fingers crossed for an infection.
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:29 pm (UTC)
I really meant to do it sooner, but an email reminder from a friend helped prod me!

I really hope it's an infection too. Kaiser hasn't gotten a needle biopsy scheduled yet, so it's time to nag.
Little Australian Bundle Of Delightful Joy: boathuggenkiss on June 11th, 2009 09:28 am (UTC)
Fingers and toes are crossed for you honey!
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:31 pm (UTC)
Thank you, Amanda!
Rosie: Stock - heart in a jarrosie_spleen on June 11th, 2009 09:50 am (UTC)
A more positive update. Still very much in my thoughts. Thanks for letting us know.

x
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:32 pm (UTC)
Thanks, Rosie. It IS slightly good news, though it sure would be nice to have the complete answer. Still waiting on that.
Entendre? Make mine a double.: baby worried eyesdeirdre_c on June 11th, 2009 10:57 am (UTC)
YIKES YIKES YIKES. For me, it's always the Not Knowing that's the worst, so I hope that this next round of tests is quick and conclusive (= easily treatable infection) and that he has a smooth, speedy recovery. *massive hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:33 pm (UTC)
The not-knowing has been awful for HSH. He's thinking not only about cancer, but about leg amputation and all sorts of awful ideas. That's what starts churning through your head while you're left worrying about the unknown. :(

Hoping it's the minor thing and not one of the biggies...
Are we back to hos over bros?lissa_bear on June 11th, 2009 11:24 am (UTC)
You and your family will be in my thoughts and prayers.
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:34 pm (UTC)
Thank you, Elissa. *hugs*
Destinadestina on June 11th, 2009 01:27 pm (UTC)
Thinking good thoughts his way. *hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 05:34 pm (UTC)
Thank you so much. I sure hope the news is good, when we finally get it.
cindy: chocolate mousetsuki_no_bara on June 11th, 2009 02:37 pm (UTC)
fingers crossed it's just an infection (and man, i never thought i'd say that) and easily treatable!
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 07:22 pm (UTC)
Me too-- infection beats cancer in SO many ways.
Maerhys: ∫ sage prayersmaerhys on June 11th, 2009 02:54 pm (UTC)
From my experiences it sounds so much like advanced cellulitis to me, and I hope that's it, because I think some IV ABX and it's pretty much taken care of. It sounds like you have the best specialists involved so hopefully you'll have a definitive diagnosis soon.

*hugs* Y'all are in my thoughts, take gentle care.
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 07:23 pm (UTC)
I sure hope it's an infection, as opposed to the other choices. And he's been miserable with this for SO long, which is even more frustrating.

Waiting on that biopsy...
Serena64: Serenityserena64 on June 11th, 2009 03:50 pm (UTC)
My thoughts and prayers are with you all.
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 07:23 pm (UTC)
Thank you, Serena!
sassy, classy, and a bit smart-assy: SnoopyWoodstockbadboy_fangirl on June 11th, 2009 04:15 pm (UTC)
Thoughts and prayers for your whole family and the doctors working on his case! Hope for the best, prepare for the worst. Whatever it is, there is treatment, and you'll be able to get through it.
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 07:26 pm (UTC)
I sure wish they'd accelerate finding out what it IS. The wait on this has been ridiculous, when you look at how long since the first symptoms, and at this point... infection or cancer, you really don't want to let it run riot any longer than possible!

Thanks for keeping us in your thoughts. :)
elanurelelanurel on June 11th, 2009 05:26 pm (UTC)
Oh man. I'm sending good thoughts your way!
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 07:26 pm (UTC)
Right back at you, Branni! Thank you. :)
Maz (or foxxy!): St Michaeltuesdaeschild on June 11th, 2009 05:39 pm (UTC)
I'm sending positive thoughts too, sweetheart. Not sure if they really work but they can't hurt, right? And I'm hoping too that it's an infection that can be cleared up once they know what they're dealing with.

*warm hugs*
The Coalition For Disturbing Metaphorshalfshellvenus on June 11th, 2009 07:48 pm (UTC)
Thank you, Marilyn!

There is very straightforward treatment if it's an infection, and I really, really hope it's that. Not only is it "safer," but once you start knocking the level of bacteria down the pain and swelling will immediately start to improve.

HSH is now driving in socks, if he doesn't have to get out of the car, to avoid putting his shoes on unnecessarily. It's a struggle to GET that one shoe on. :(